Some patients have had inappropriate hysterectomies only to discover, after the fact, that their pelvic pain was originating from their bladder. IC patient Angela Burch won a $2,000,000 federal medical malpractice settlement in Florida when her ob-gyn needlessly removed her healthy uterus even after the urologist reported that she had interstitial cystitis. This is not [...]
IC affects not only the patient but also the extended family. Parents with IC worry about their ability to support their family. Children wonder why their parent cannot attend normal daily functions, like baseball games, and often mistakenly assume that a parent is dying. The ICN has written a children's book "My Mom Has IC: [...]
Tik Tok Video on the IC Diet @icnetworkjill iC Awareness Month Daily Fact 6 Some IC patients experience severe symptoms after drinking coffee, tea, soda, cranberry, chocolate or multivitamins. The ICN provides extensive information on the IC diet as well as coaching if you are struggling! #ictok #icawareness ♬ original sound - IC Network IC/BPS [...]
Tik Tok Video @icnetworkjill iC Awareness Daily Fact 5 . It might feel like a UTI but it can be a chemical injury. When used daily and/or in high quantities, ketamine can badly damage the bladder! #ictik #icawareness ♬ original sound - IC Network Ketamine Cystitis In the past ten years, ketamine cystitis has emerged [...]
Donate Directly To An IC Research Center Beaumont Health - Led by Ken Peters MD, Beaumont urology research efforts have uncovered dramatic new findings that are helping clinicians better treat IC. What makes Beaumont a great donation choice is their focus on the patient, their desire to improve patient care and their willingness to study [...]
IC Awareness Pin The IC Awareness Ribbons are in!!! Support Interstitial Cystitis Awareness & show your pride by wearing our teal colored ribbon! You can buy them individually or in a five or ten pack for sharing with family, friends and support group members. Buy them now at: http://https://www.icnsales.com/ic-awareness-items/ Jill :)
We are delighted to share that US Representative Mike Thompson, 1st District - California, has honored our IC Awareness Month campaign this year by issuing a Certificate of Special Congressional Recognition "in recognition of outstanding and invaluable service to the community." We would like to thank Congressman Thompson for recognizing the struggles that IC patients [...]
We sent out a blast email to 25,000 patients to kick this off. Just think, if just 10,000 of you post about IC Awareness Month, Tweet to "#icfeelslike", posts about it on their Facebook page, sends out a press release, makes a poster, this will be the largest IC Awareness campaign EVER!!! The IC movement [...]
We've just finished the first of several IC Awareness Posters that you can reproduce and post in your support groups, doctor offices, libraries, restrooms! It's 8/5 by 11 and will print easily on a normal sheet of computer paper! Full Size & Best Print Resolution: Print your own copy from a pdf file here! https://www.icawareness.org/2012poster.pdf [...]
